International Angelman Day (IAD) is an annual event held on February 15th.
It is observed by over 50 international charitable/support organisations around the world.
These organisations support people with Angelman Syndrome, their families, care givers, and service providers; they promote and initiate research for AS and create educational resources. Together we have a greater voice.
WHO ARE WE?
The IAD Collective is an informal group of not-for-profit charitable organisations operating independently in different countries all around the world. While each organisation has different missions, they all support people with Angelman Syndrome and their families. Broadly speaking, the global AS community supports individuals and families internationally – through networking events, educational conferences, informative websites, advice on day-to-day management strategies, family peer-to-peer connections, and in the funding of research into treatments for Angelman Syndrome.
WHY DO WE HAVE AN INTERNATIONAL DAY?
Recent scientific advances show that there are potential treatments for the cognitive, motor and epileptic aspects of Angelman Syndrome, as well as strides in better understanding symptom management, communication and educational strategies. IAD is a trigger to unite families and resources, to inspire collaborations within our networks, and to spread global awareness using the most current information.
The purpose of this day is to:
Raise awareness worldwide of the condition
Mobilise people to action & encourage fundraising for the individual organisation in their country
Promote research and educational resources in the organisation’s own country.
Remember those people with Angelman Syndrome who are no longer with us.
Inclusive, Ambitious, Professional, Respectful, Knowledgeable