Angelman Syndrome Alliance (ASA)
The Angelman Syndrome Alliance (ASA) is a partnership of small organizations from around the world that are focused on supporting people with Angelman Syndrome, their loved ones, carers and clinicians. By combining resources, knowledge and a relentless dedication to initiate change, the ASA is uniquely positioned to drive advances in scientific knowledge about Angelman Syndrome.
Angelman Hong Kong
UK Angelman Association
Angelman Verein Österreich
Argentina AS organization
The Angelman Network (NZ)
ASA and ASF Announce new joint initiative in forming a Community Advisory Board. - November 2020.
The International Angelman Syndrome Alliance (ASA) and the Angelman Syndrome Foundation (ASF) are delighted to announce details of a newly formed joint initiative: the Global Community Advisory Board. They will work together to represent the Angelman community as a unified voice when engaging with pharmaceutical companies looking to enter research programmes.
Supported by Eurodis, the European organisation for Rare Disorders, the Angelman CAB will be a group of trained advocates who use their knowledge and expertise to discuss and advise on the latest developments, challenges and issues related to medical treatments and procedures under development in in Angelman Syndrome.
Angelman Latin America Alliance/
Angelman Argentina, ASF and announce the creation of the Angelman Latin America Alliance.
The Angelman Syndrome Foundation has generously offered to share resources in Spanish that will result in the availability of family courses and a full regional directory of trained professionals to support the care of those who have Angelman syndrome.
Angelman Syndrome Foundation (ASF)
CIAN Clínica Angelman Buenos Aires
Foundation for Angelman Syndrome Therapeutics (FAST)
FAST US - Parent Org
Global Angelman Registry