AS ORGANISATIONS

Angelman Organisations & Support Groups from around the World

International Angelman Day brings together AS organisations and families from around the world.  Depending on the legal regulations in each country, organisations vary in their structure and their objectives.

 

Most listed here are formally registered charities, others are informal parent support groups. Many countries do not yet have a registered charitable organisation/NGO, but we include and support all family groups, in all countries. 

 

Organisations and groups are listed here in alphabetical order, with links to their websites and/or FB pages/groups:

Argentina

Angelman Argentina Asociación Civil - National Association website

 

Fundación Casa Angelman/FAST Argentina - Web de la Fundación

Australia

Angelman Syndrome Association Australia (ASAA) - National Association website

 

Austria

Angelman Verein Österreich - National Association Website

 

Belgium

Angelman Syndroom België - National Association Website

 

Brazil

Angelman Brasil - National Association website

 

Canada​

Canadian Angelman Syndrome Society (CASS)- National Association website

FAST Canada - National Association website

Quebec Angelman Society - Quebec region [website in French and English​]

Regional support:

Chile

Asociación Nacional Familias Angelman Chile - National Association website

China

Colombia

FAST Colombia - National Association  (website under construction)

  • SINDROME ANGELMAN COLOMBIA - FB group for families & professionals in Colombia (Grupo de FB para las familias y los profesionales en Colombia 

 

Czech Republic

Angelman CZ - National Association website

 

Denmark

Angelmanforeningen i Danmark - National Association website

 

Eastern European countries (network)

 

Ecuador

  • Síndrome de ANGELMAN - ECUADOR - public Facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

 

Finland

Suomen Angelman-yhdistys ry - National Association perheille ja ammattilaista Suomessa verkkosivuilla

  • Angelman perheet - private Facebook group for families in Finland (Facebook-ryhmä perheille Suomessa)

 

France

Association Française du Syndrome d'Angelman (AFSA) - National Association Website

Syndrome Angelman France - National Association website

FAST France - National Association website

Association Killian - Website to raise awarenes of Angelman Syndrome & bring families together in France (Site de sensibilisation du syndrome d'Angelman et de réunir les familles en France)

 

Germany

Angelman e.V. - National Association website

 

Greece & Cyprus

Angelman Syndrome Greece Association –  National Association website

Σύλλογος Angelman - info@angelman.gr

 

Guatamala

 

Hong Kong

Hong Kong Angelman Syndrome Foundation - National Association website (English, Traditional Chinese and Simplified Chinese versions)

 

Hungary

Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association website

 

India

Angelman Foundation - National Association

 

Ireland

Angelman Syndrome Ireland - National Association website

 

Israel

Israeli Foundation for Angelman Syndrome - National Association website (Hebrew and English versions)

 

Italy

O.R.S.A. - Organizzazione Sindrome di Angelman - National Association website

Associazione Angelman - National Association website

FAST ITALIA – National Association website

Japan

Angel-no-kai - National Association website

Korea (South)

KASS한국엔젤만증후군협회(Korea Angelman Syndrome Society) - National Association, Korea

Latin America

FAST LatAm - Covers Central and South America

 

Malaysia

 

 

Malta

Mexico

Morocco

Netherlands

Vereniging Angelman Syndroom Nederland (vASN) - National Association website

Nina Foundation - National Assocaition to stimulate Scientific Research

 

New Zealand

The Angelman Network - National Association website

 

Norway

Norsk Forening for Angelman Syndrom - National Association website (National Association nettsted for familier og fagfolk i Norge)

 

Philippines

  • Angelman Syndrome Philippines - National Association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

 

Poland

Fundacja Angelmana - National Association website

 

Portugal

Associação Síndrome de Angelman de Portugal - National Association website

Romania

Angelman Syndrome Romania - Private Facebook group for families

 

Russia

Sindrom Angela/Angel's Syndrome Foundation - National Association website

South Africa

 

Spain

ASA - Asociación síndrome de Angelman - Asociacion Nacional Website

FAST España - National organisation (website under construction)

 

Sweden

 

Switzerland

Angelman Verein Schweiz - National Association (German language)

 

Tunisia

L’Association Tunisienne des Syndromes Angelman et Rett (ATSAR) - National Association, Tunisia

 

Turkey

Angelman Sendromu Türkiye Resmi Sayfası - National Association, Turkey - Official Website

Ukraine

Angelman syndrome Ukraine / GFAS Patient organization  - Official website

United Kingdom

AngelmanUK - National Association website

FAST UK - National Association website

 

Uruguay

Website coming soon

Email:  Síndrome de Angelman Uruguay: sangelmanuruguay@gmail.com

 

USA

Angelman Syndrome Foundation (ASF) - National Association website

FAST USA- National Association website

  • FAST USA- National Association Facebook page 

 

USA - FB groups for Regions:

 

USA - FB groups for States:

 

USA - FB groups for Cities

Vietnam

 

Venezuala

“The breaking of that awful feeling of isolation is the greatest gift one Angelman family can give to another…. Those of you who will share your experiences will do it because in the Angelman family that is what we do.  Whatever problems you have to meet, others not only understand but have found a solution.  Whatever road you have traveled, others have traveled before you, so there is no need to travel alone.”  - Audrey Angelman