INTERNATIONAL ANGELMAN DAY

AS ORGANISATIONS

Angelman Organisations & Support Groups from around the World

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International Angelman Day brings together AS organisations from around the world.  Depending on the legal regulations in each country, organisations vary in their structure and their objectives.

Some are formally registered charities, others are informal parent support groups. Many countries do not yet have a registered charitable organisation/NGO, but we include and support all family groups, in all countries. 

Organisations and groups are listed here in alphabetical order, with links to their websites and/or FB pages/groups:

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Argentina

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• Angelman Argentina Asociación Civil - National Association website

• Angelman Argentina Asociación Civil - National Association Facebook Page

• Desafio Todos Podemos Comunicarnos Angelman Argentina - Facebook group for families in Argentina

• Fundación Casa Angelman - Website (web de la Fundación)

• Casa Angelman - pagina de Facebook

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Australia

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• Angelman Syndrome Association Australia (ASAA) - National Association website

• Angelman Syndrome Association Australia - National Association Facebook Page

• FAST Australia - National Association website

• Queensland Angelman Association

• Angelman Association of Western Australia

Austria

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• Angelman Verein Österreich - National Association Website

• Angelman Verein Österreich - National Association Facebook page

Belgium

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• Angelman Syndroom België - National Association Website

• Angelman Syndroom België - National Association Facebook page

Brazil​

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• Angelman Brasil - National Association website

• Angelman Brasil - National Association Facebook Page

• Associação Comunidade Sindrome de Angelman - Private Facebook group

Canada​

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• Canadian Angelman Syndrome Society (CASS)- National Association website

• Canadian Angelman Syndrome Society (CASS) - National Association Facebook page

• FAST Canada - National Association website

• Angelman Syndrome Families - BC - Facebook page for families in British Columbia, Canada

• Angelman Syndrome Families - CANADA - Facebook group for families in Canada

Canada - Regional & Provincial Organisations

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• Angelman Syndrome Alberta-Saskatchewan Families - facebook group for families in Alberta & Saskatchewan

• La Fondation Syndrome d'Angelman - Quebec region website in French and English

• Centre de répit Angelman respite center - Société du syndrome d'Angelman Facebook page for French speaking Canadians

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Chile​

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• Asociación Nacional Familias Angelman Chile - National Association website

• Asociación Nacional Familias Angelman Chile - National Association Facebook Page

• Angelman Chile - Facebook page for families in Chile (La página de Facebook Nacional para las familias en Chile)

• ANGELMAN CHILE - Facebook group for families in Chile

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China

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• 天使综合症之家-Chinese Angelman Syndrome Organization - National Organization Facebook Page

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Colombia

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• Fundación Angelman Colombia - National Association  (website under construction)

• SINDROME ANGELMAN COLOMBIA - facebook group for families & professionals in Colombia (Grupo de Facebook para las familias y los profesionales en Colombia 

Czech Republic

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• Angelman CZ - National Association website

• Angelman CZ - National Association Facebook page

Denmark

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• Angelmanforeningen i Danmark - National Association website

• Angelmanforeningen i Danmark - National Association Facebook page

• Angelmanforeningen i Danmark - private Facebook Group

Eastern European countries (network)

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• Angelman Syndrome Eastern Europe - Facebook group for families in Eastern Europe including countries that have a National Association

Ecuador

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• Síndrome de ANGELMAN - ECUADOR - public Facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

Finland

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• Suomen Angelman-yhdistys ry - National Association perheille ja ammattilaista Suomessa verkkosivuilla

• Angelman perheet - private Facebook group for families in Finland (Facebook-ryhmä perheille Suomessa)

France

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• Association Française du Syndrome d'Angelman (AFSA) - National Association Website

• Association Française du Syndrome d'Angelman (AFSA) - National Association Facebook page

• Syndrome Angelman France - National Association website

• Syndrome Angelman France - National Association Facebook page

• Syndrome Angelman France - Youtube videos in French language

• FAST France - National Association website

• FAST France - National Association Facebook Page

• Association Killian - Website to raise awarenes of Angelman Syndrome & bring families together in France (Site de sensibilisation du syndrome d'Angelman et de réunir les familles en France)

Germany

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• Angelman e.V. - National Association website

• Angelman e.V. - National Association Facebook page

• Angelman-Eltern-Gruppe - Private Facebook group for parents & families in Germany

• Jouline's kleine Welt - Private Facebook group for families in Germany

Greece & Cyprus

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• Angelman Syndrome Greece & Cyprus –  National Association website

• Angelman Syndrome Greece & Cyprus/Σύνδρομο Άγγελμαν Ελλάδα & Κύπρος – private Facebook group

Guatamala​

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• Angelman Guatemala - National Association Facebook page

Hong Kong

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• Hong Kong Angelman Syndrome Foundation - National Association website (English, Traditional Chinese and Simplified Chinese versions)

• Hong Kong Angelman Syndrome Foundation - National Association Facebook page

Hungary

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• Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association website

• Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association Facebook page

India

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• Angelman Foundation - National Association

• Angelman Syndrome India - Private Facebook group

• Angelman Society Guwahati India - Public Facebook group 

Ireland

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• Angelman Syndrome Ireland - National Association website

• Angelman Syndrome Ireland - National Association Facebook Page

Israel

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• Israeli Foundation for Angelman Syndrome - National Association website (Hebrew and English versions)

• תסמונת אנגלמן - National Association Facebook page

Italy

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• O.R.S.A. - Organizzazione Sindrome di Angelman - National Association website

• Sindrome di Angelman - Italia - Private FB support group for ORSA (Italy)

• Associazione Angelman - National Association website

• Associazione Angelman - National Association Facebook Page

• FAST ITALIA – National Association website

• Fast Italia : Association Facebook Page

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Japan

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• Angel-no-kai - National Association website

• エンジェルの会 - National Association Facebook Page

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Korea (South)

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• KASS한국엔젤만증후군협회(Korea Angelman Syndrome Society) - National Association, Korea

• 함께Korea Angelman Syndrome Society - National Association Facebook Page

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Latin America

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• FAST LatAm - Covers Central and South America

• FAST LatAm - Association Facebook Page​

Malaysia

• Angelman Syndrome Malaysia - Private Facebook group for families in Malaysia (kumpulan facebook untuk keluarga di Malaysia)

Malta

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• Angelman Syndrome Community Malta - General AS information Facebook Page

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Mexico​

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• Sindrome de Angelman México - Private Facebook group 

• Angelman Syndrome - Mexico - (old website)

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Morocco

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• Syndrome Angelman Morocco - Private Facebook group 

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Netherlands

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• Vereniging Angelman Syndroom Nederland (vASN) - National Association website

• Angelman Syndroom NL -  Private Facebook group

• Nina Foundation - National Assocaition to stimulate Scientific Research

• NinaFoundation - National Association Facebook Page

• Nina Foundation - Public Facebook group 

New Zealand

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• The Angelman Network - National Association website

• The Angelman Network - National Association Facebook Page

• The Angelman Network - Private Facebook group

• Angelman Syndrome NZ - Private Facebook group for families/whanau in New Zealand interested in Angelman syndrome

Norway

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• Norsk Forening for Angelman Syndrom - National Association website (National Association nettsted for familier og fagfolk i Norge)

• Norsk Forening for Angelman Syndrom - National Association Facebook Page (National Angelmans syndrom Association Facebook Page for familier i Norge)

• Angelmans syndrom (Norsk forening for Angelmans syndrom) - Private Facebook group for families in Norway

Philippines

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• Angelman Syndrome Philippines - National Association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

Poland

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• Fundacja Angelmana - National Association website

• Fundacja Angelmana - National Association Facebook Page

Portugal

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• Associação Síndrome de Angelman de Portugal - National Association website

• Angel - Associação Síndrome de Angelman Portugal - National Association Facebook Page

• Síndrome de Angelman - Portugal - Private Facebook group

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Russia​

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• Sindrom Angela/Angel's Syndrome Foundation - National Association website

• Angelman_Syndrome - National Association Facebook page

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South Africa

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• South African Angelman Syndrome Group - Private Facebook group for families in South Africa (Suid-Afrikaanse Angelman sindroom Groep)

• Angelman Syndrome in South Africa - Public Facebook group for parents, family members, friends, therapists and educators of children with Angelman Syndrome in South Africa​

Spain

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• ASA - Asociación síndrome de Angelman - Asociacion Nacional Website

• ASA - Asociación síndrome de Angelman-ESPAÑA - Facebook la página de la Asociación Nacional

• FAST España - National organisation (website under construction)

• FAST España - Facebook Page

Sweden

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• Angelman Syndrome - Sverige - Private Facebook group for families (Riksförbundet sida för familjer i Sverige)

Switzerland

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• Angelman Verein Schweiz - National Association (German language)

• Angelman Verein Schweiz - Facebook page (German language)

• AngelSuisse - Private Facebook group (French language)

Tunisia

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• L’Association Tunisienne des Syndromes Angelman et Rett (ATSAR) - National Association, Tunisia

• ATSAR Tunisie - National Association Facebook Page

Turkey

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• Angelman Sendromu Türkiye Resmi Sayfası - National Association, Turkey - Official Website

• ANGELMAN SENDROMU TÜRKİYE & ANGELMAN SYNDROME TURKEY - Private Facebook group (Türkiye'de aileler için Facebook sayfası)

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United Kingdom

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• AngelmanUK - National Association website

• AngelmanUK Support & Chat - Private Facebook group

• AngelmanUK Scotland. - Private Facebook group

• FAST UK - National Association website

• FAST UK  - National Association Facebook Page

Uruguay

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• SINDROME DE ANGELMAN EN URUGUAY - Facebook Page la página de la Asociación Nacional

USA

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• Angelman Syndrome Foundation (ASF) - National Association website

• Angelman Syndrome Foundation - National Association Facebook Page

• Angelman Syndrome Foundation (ASF) - Private Facebook group 

• FAST USA- National Association website

• FAST USA- National Association Facebook page 

USA - Regional Organisations​

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• MidWest Angelman Families - Private Facebook group for families in Iowa, Nebraska, Missouri, and Kansas

• Pacific North West Angelman Syndrome Foundation - Private Facebook group for states of Washington, Oregon and Alaska

• Southern PA/MD/ WV/ Northern VA/ D.C. Angelman Familes - Private facebook group for families in Pennsylvania, Maryland, West Viriginia, Virginaia and Washington DC.

USA - State Organisations

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• Angelman Syndrome Families of Arkansas - Private Facebook group for families in Arkansas

• Angelman Syndrome Families of California - Private Facebook group for families & professionals in California

• Florida Angelman Syndrome Parents - Private Facebook group for parents in Florida

• Central Illinois Angels - Private Facebook group for families in Central Illinois

• Angelman Syndrome Families in Indiana - Private Facebook group for families in Indiana

• Massachusetts Angelman Connections - Private Facebook group for families in Massachusetts

• Angelman Missouri - Private Facebook group for families in Missouri

• Angelman Families of Tennessee - Private Facebook group for mothers of a child or adult with Angelman Syndrome in Tennessee

• Lone Star State Angelman Syndrome Group - Private Facebook group for families in Texas

• Angelman Syndrome Families of Utah - Private Utah State facebook page

• Va & NC Angels (Angelman Syndrome) - Public Facebook group for families in Virginia and North Carolina

• Wisconsin Angelman Families - Private Facebook page for families in Wisconsin

USA - Cities

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• Angelman's of Houston and surrounding areas - Private Facebook group for families in and around Houston, Texas

• Long Island "Angels" ( ANGELMAN SYNDROME FAMILYS) - Private Facebook group for families in Long Island area of New York

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Vietnam

• Angelman Vietnam - on Twitter

Venezuala

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• Fundación Un Angel en Venezuela - La página de Facebook para las familias de niños con síndrome de Angelman en Venezuela 

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