Angelman Organisations & Support Groups from around the World

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International Angelman Day brings together AS organisations and families from around the world.  Depending on the legal regulations in each country, organisations vary in their structure and their objectives.

 

Most listed here are formally registered charities, others are informal parent support groups. Many countries do not yet have a registered charitable organisation/NGO, but we include and support all family groups, in all countries. 

 

Organisations and groups are listed here in alphabetical order, with links to their websites and/or FB pages/groups:

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Argentina

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Angelman Argentina Asociación Civil - National Association website

• Angelman Argentina Asociación Civil - National Association Facebook Page

• Desafio Todos Podemos Comunicarnos Angelman Argentina - Facebook group for families in Argentina

 

FAST Argentina - Web de la Fundación (no link)

• Casa Angelman/FAST Argentina - pagina de Facebook

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Australia

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Angelman Syndrome Association Australia (ASAA) - National Association website

• Angelman Syndrome Association Australia - National Association Facebook Page

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FAST Australia - National Association website

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Angelman Association of Western Australia (regional website)

• Angelman Syndrome Association of WA (private Facebook group)

• Angelman Syndrome Association of South Australia (Facebook Page)

• Australian families with AS

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Austria

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Angelman Verein Österreich - National Association Website

• Angelman Verein Österreich - National Association FB page

 

Belgium

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Angelman Syndroom België - National Association Website

• Angelman Syndroom België - National Association FB page

 

Brazil​

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Angelman Brasil - National Association website

• Angelman Brasil - National Association FB Page

• Associação Comunidade Sindrome de Angelman - Private FB group

 

Canada​

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Canadian Angelman Syndrome Society (CASS)- National Association website

• Canadian Angelman Syndrome Society (CASS) - National Association FB page

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FAST Canada - National Association website

• Angelman Syndrome Families - BC - FB page for families in British Columbia, Canada

• Angelman Syndrome Families - CANADA - FB group for families in Canada

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Quebec Angelman Society - Quebec region [website in French and English​]

• Centre de répit Angelman respite center - Société du syndrome d'Angelman FB page for French speaking Canadians

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Regional support:

• ​Angelman Syndrome Alberta-Saskatchewan Families - FB group for families in Alberta & Saskatchewan

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Chile​

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Asociación Nacional Familias Angelman Chile - National Association website

• Asociación Nacional Familias Angelman Chile - National Association FB Page

• Angelman Chile - Facebook page for families in Chile (La página de FB Nacional para las familias en Chile)

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China

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• 天使综合症之家-Chinese Angelman Syndrome Organization - National Organization FB Page

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Colombia

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FAST Colombia - National Association  website

• Fundación Angelman Colombia -National Association FB Page

• SINDROME ANGELMAN COLOMBIA - FB group for families & professionals in Colombia (Grupo de FB para las familias y los profesionales en Colombia 

 

Czech Republic

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Angelman CZ - National Association website

• Angelman CZ - National Association FB page

 

Denmark

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Angelmanforeningen i Danmark - National Association website

• Angelmanforeningen i Danmark - National Association Facebook page

• Angelmanforeningen i Danmark - private Facebook Group

 

Eastern European countries (network)

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• Angelman Syndrome Eastern Europe - Facebook group for families in Eastern Europe including countries that have a National Association

 

Ecuador

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• Síndrome de ANGELMAN - ECUADOR - public Facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

 

Finland

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Suomen Angelman-yhdistys ry - National Association perheille ja ammattilaista Suomessa verkkosivuilla

• Angelman perheet - private Facebook group for families in Finland (Facebook-ryhmä perheille Suomessa)

 

France

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Association Française du Syndrome d'Angelman (AFSA) - National Association Website

• Association Française du Syndrome d'Angelman (AFSA) - National Association Facebook page

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Syndrome Angelman France - National Association website

• Syndrome Angelman France - National Association Facebook page

• Syndrome Angelman France - Youtube videos in French language

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FAST France - National Association website

• FAST France - National Association Facebook Page

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Association Killian - Website to raise awarenes of Angelman Syndrome & bring families together in France (Site de sensibilisation du syndrome d'Angelman et de réunir les familles en France)

 

Germany

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Angelman e.V. - National Association website

• Angelman e.V. - National Association Facebook page

• Angelman-Eltern-Gruppe - Private Facebook group for parents & families in Germany

• Jouline's kleine Welt - Private Facebook group for families in Germany

 

Greece & Cyprus

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Angelman Syndrome Greece Association –  National Association website

Σύλλογος Angelman - info@angelman.gr

• Angelman Syndrome Greece & Cyprus/Σύνδρομο Άγγελμαν Ελλάδα & Κύπρος – private Facebook group

 

Guatamala​

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• Angelman Guatemala - National Association Facebook page

 

Hong Kong

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Hong Kong Angelman Syndrome Foundation - National Association website (English, Traditional Chinese and Simplified Chinese versions)

• Hong Kong Angelman Syndrome Foundation - National Association Facebook page

 

Hungary

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Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association website

• Magyar-Angelman-Szindróma-Alapítvány (Hungarian Angelman Syndrome Foundation) - National Association Facebook page

 

India

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Angelman Foundation India - National Association

• Angelman Foundation India - National Association Facebook Page

• Angelman Syndrome India - Private Facebook group

• Angelman Society Guwahati India - Public Facebook group 

 

Ireland

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Angelman Syndrome Ireland - National Association website

• Angelman Syndrome Ireland - National Association Facebook Page

 

Israel

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Israeli Foundation for Angelman Syndrome - National Association website (Hebrew and English versions)

• תסמונת אנגלמן - National Association Facebook page

 

Italy

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O.R.S.A. - Organizzazione Sindrome di Angelman - National Association website

• ORSA Organizzazione Sindrome di Angelman - National Association Facebook Page

• Sindrome di Angelman - Italia - Private FB support group for ORSA (Italy)

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Associazione Angelman - National Association website

• Associazione Angelman - National Association Facebook Page

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FAST ITALIA – National Association website

• Fast Italia : Association Facebook Page

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Japan

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Angel-no-kai - National Association website

• エンジェルの会 - National Association Facebook Page

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Korea (South)

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KASS한국엔젤만증후군협회(Korea Angelman Syndrome Society) - National Association, Korea

• 함께Korea Angelman Syndrome Society - National Association Facebook Page

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Latin America

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FAST LatAm - Covers Central and South America

• FAST LatAm - Association Facebook Page​

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Lebanon

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Lebanese Angelman Syndrome Association - National Association, Beirut, Facebook Page

 

Malaysia

 

• Angelman Syndrome Malaysia - Private Facebook group for families in Malaysia (kumpulan facebook untuk keluarga di Malaysia)

 

Malta

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• Angelman Syndrome Community Malta - General AS information Facebook Page

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Mexico​

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• Sindrome de Angelman México - Private Facebook group 

• Angelman Syndrome - Mexico - (old website)

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Morocco

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• Syndrome Angelman Morocco - Private Facebook group 

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Netherlands

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Vereniging Angelman Syndroom Nederland (vASN) - National Association website

• Angelman Syndroom NL -  Private Facebook group

 

New Zealand

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The Angelman Network - National Association website

• The Angelman Network - National Association Facebook Page

• The Angelman Network - Private Facebook group

• Angelman Syndrome NZ - Private Facebook group for families/whanau in New Zealand interested in Angelman syndrome

 

Norway

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Norsk Forening for Angelman Syndrom - National Association website (National Association nettsted for familier og fagfolk i Norge)

• Norsk Forening for Angelman Syndrom - National Association Facebook Page (National Angelmans syndrom Association Facebook Page for familier i Norge)

• Angelmans syndrom (Norsk forening for Angelmans syndrom) - Private Facebook group for families in Norway

 

Philippines

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• Angelman Syndrome Philippines - National Association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

 

Poland

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Fundacja Angelmana - National Association website

• Fundacja Angelmana - National Association Facebook Page

 

Portugal

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Associação Síndrome de Angelman de Portugal - National Association website

• Angel - Associação Síndrome de Angelman Portugal - National Association Facebook Page

• Síndrome de Angelman - Portugal - Private Facebook group

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Romania

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Angelman Syndrome Romania - Private Facebook group for families

 

Russia​

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Sindrom Angela/Angel's Syndrome Foundation - National Association website

• Angelman_Syndrome - National Association Facebook page

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South Africa

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• South African Angelman Syndrome Group - Private Facebook group for families in South Africa (Suid-Afrikaanse Angelman sindroom Groep)

• Angelman Syndrome in South Africa - Public Facebook group for parents, family members, friends, therapists and educators of children with Angelman Syndrome in South Africa​

 

Spain

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ASA - Asociación síndrome de Angelman - Asociacion Nacional Website

• ASA - Asociación síndrome de Angelman-ESPAÑA - Facebook la página de la Asociación Nacional

FAST España - National organisation (website under construction)

• FAST España - Facebook Page

 

Sweden

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• Angelman Syndrome - Sverige - Private Facebook group for families (Riksförbundet sida för familjer i Sverige)

 

Switzerland

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Angelman Verein Schweiz - National Association (German language)

• Angelman Verein Schweiz - Facebook page (German language)

• AngelSuisse - Private Facebook group (French language)

 

Tunisia

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L’Association Tunisienne des Syndromes Angelman et Rett (ATSAR) - National Association, Tunisia

• ATSAR Tunisie - National Association Facebook Page

 

Turkey

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Angelman Sendromu Türkiye Resmi Sayfası - National Association, Turkey - Official Website​

• FACEBOOK - ANGELMAN SENDROMU TÜRKİYE & ANGELMAN SYNDROME TURKEY​

• INSTAGRAM - Angelman Sendromu Derneği

• TWITTER - Angelman Sendromu Derneği

• YOUTUBE - Angelman Sendromu Türkiye

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Ukraine

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Angelman syndrome Ukraine / GFAS Patient organization  - Official website

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United Kingdom

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AngelmanUK - National Association website

• AngelmanUK Support & Chat - Private Facebook group

• AngelmanUK Scotland. - Private Facebook group

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FAST UK - National Association website

• FAST UK - Foundation for Angelman Syndrome Therapeutics UK - National Association Facebook Page

• FAST UK - Foundation for Angelman Syndrome Therapeutics UK - Private FB group

 

Uruguay

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Website coming soon

• SINDROME DE ANGELMAN EN URUGUAY (SAURU) - Facebook Page la página de la Asociación Nacional

• sindromedeangelmanuruguay - Instagram page

Email:  Síndrome de Angelman Uruguay: sangelmanuruguay@gmail.com​

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UAE - United Arab Emirates

 

USA

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Angelman Syndrome Foundation (ASF) - National Association website

• Angelman Syndrome Foundation - National Association Facebook Page

• Angelman Syndrome Foundation (ASF) - Private Facebook group 

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FAST USA- National Association website

• FAST USA- National Association Facebook page 

 

USA - FB groups for Regions:

• MidWest Angelman Families - Private FB group for families in Iowa, Nebraska, Missouri, and Kansas

• Pacific North West Angelman Syndrome Foundation - Private FB group for families in Washington, Oregon and Alaska

• Southern PA/MD/ WV/ Northern VA/ D.C. Angelman Familes - Private FB group for families in Pennsylvania, Maryland, West Viriginia, Virginaia and Washington DC.

 

USA - FB groups for States:

• ​Angelman Syndrome Families of Arkansas - Private FB group for families in Arkansas

• Angelman Syndrome Families of California - Private FB group for families & professionals in California

• Florida Angelman Syndrome Parents - Private FB group for parents in Florida

• Central Illinois Angels - Private FB group for families in Central Illinois

• Angelman Syndrome Families in Indiana - Private FB group for families in Indiana

• Massachusetts Angelman Connections - Private FB group for families in Massachusetts

• Angelman Missouri - Private FB group for families in Missouri

• Angelman Families of Tennessee - Private FB group for mothers of a child/adult with AS in Tennessee

• Lone Star State Angelman Syndrome Group - Private FB group for families in Texas

• Angelman Syndrome Families of Utah - Private FB group for families in Utah 

• Va & NC Angels (Angelman Syndrome) - Public FB group for families in Virginia and North Carolina

• Wisconsin Angelman Families - Private FB group for families in Wisconsin

 

USA - FB groups for Cities

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• Angelman's of Houston and surrounding areas - Private FB group for families in and around Houston, Texas

• Long Island "Angels" ( ANGELMAN SYNDROME FAMILYS) - Private FB group for families in Long Island area, NY

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Vietnam​

 

Venezuala

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• Fundación Un Angel en Venezuela - La página de Facebook para las familias de niños con síndrome de Angelman en Venezuela 

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