related links
What is LADDER
and how does it advance RESEARCH?
Linking Angelman and Dup15q Data for Expanded Research (LADDER), is a strategic collaboration between the Angelman Syndrome Foundation and the Dup15q Alliance.
Both organizations have made significant investments in the search for therapeutics and treatment. Read more here.
What is
FAST Search & Rescue?
The goal of the FAST Search & Rescue initiative is to
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Build a robust centralized collection of data to understand the true prevalence of this disorder in different geographic locations.
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To enable global community support and education.
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To ensure industry partners have an understanding of where these global populations reside.
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To create an opportunity to understand the natural history of the disease in these different geographic locations.
Read more here.
related AWARENESS DATES
Other international days that are relevant to Angelman syndrome and can ALSO be used to raise awareness, fundraise and celebrate, include:
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10th FEBRUARY: International Epilepsy Day
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28/29th FEBRUARY: Rare Disease Day
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26th MARCH: Purple Day. People from around the globe are asked to spread the word about epilepsy by wearing purple.
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3rd DECEMBER: International Day of Persons with Disabilities
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10th DECEMBER: Human Rights Day